Stehanie Romer, HLHS, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, disability housing, crisis, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan, Crisis Cicatrix, Author, Podcast, Julie Mae Morefield, Nina Kash, Andrew Paukstitus, disability, Sarah Miller, Katie Greene, Caitlyn MacKay, Samantha Davis, Becca Atherton, Amanda Harper, Kayla, Tiffany Wasiuk, Jasmine Gilgosch, Amber McMillan

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Stephanie Romer's Blog:

Born 1985. HLHS. TGA. ASD. VSD. MVS.

In my late twenties I began learning about the damage CHD does to our brains. After interviewing and meeting hundred...

February 1, 2019

I am just the nurse who held your hand, looked you in the eye, and made you feel like the strongest woman in the wor...

You are finally an adult and able to live on your own. You were born with a disability or developed one as young per...

"Don't wait to see if the cyberbullying goes away. Take immediate steps" - Webroot Yes, we also all...

Ask us questions, even if we can't talk we can shake our heads. Make jokes, even if it hurts our hearts or lungs...

A special thanks to the nurses, techs, and doctors who are nice to us, patient, gentle, and empathetic to the realit...

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