Stehanie Romer, HLHS, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, disability housing, crisis, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan, Crisis Cicatrix, Author, Podcast, Julie Mae Morefield, Nina Kash, Andrew Paukstitus, disability, Sarah Miller, Katie Greene, Caitlyn MacKay, Samantha Davis, Becca Atherton, Amanda Harper, Kayla, Tiffany Wasiuk, Jasmine Gilgosch, Amber McMillan

Educate. Inspire. Heal.

Please see Terms & Conditions for all privacy policies and disclosures.

Copyright © 2020  |  Website Design by Stephanie Romer, Founder of CHD Legacy

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Terms & Conditions

Heal At Your Own Pace.

Break The Invisible Silence.

I, Stephanie Romer, do not claim to be a mental health professional or a doctor of any kind.

Any monies donated will be strictly used for website expenses and donations to help registered congenital heart disease organizations. Any information you share with me will be strictly kept private and used for my own research unless otherwise specified between both parties. 

Anyone who agrees to participate in my website is sharing their own personal information at their own risk and I am not liable for any conflicts etc that may arise due to your participation on my page or information shared on my page. 

You will be instantly removed and blocked from my website and forum if there are any reports of any abuse, nudity, or conflict. 

If there are any threats of harm to anyone, I will report you to the police immediately. 

This website is built strictly to give congenital heart disease survivors and families a virtual home to feel loved, comfortable, not alone, and to create a legacy for future generations to learn from our experiences. 

This is a SAFE PLACE to share your pain and always know you are supported by your CHD FAMILY.

Below are a list of numbers and websites, some even have Live Chat on them. I know it's scary and intimidating. Just remember you will never know these people in your life or have to face them. They will never know who you are. You can even dial *67 to block your number if you'd like. What matters is your HEALTH and SURVIVAL.

 

Mental and physical pain is extremely detrimental to our delicate CHD bodies and minds. we have been through A LOT MORE THAN MOST PEOPLE  IN THEIR LIFETIME BY AGE 15. You do not have to live this life alone. 

 

Please take the first step and click or call. It's easier to call to get it over with.

If I had any superpower it would be to be able to be on call for CHD Survivors & Families 24-7. But please know you can write to me ANYTIME at stephanie@chdlegacy.com. 

IF YOU WANT TO HURT YOURSELF

Please call a suicide hotline and they WILL help you! 

1-800-273-8255 website: https://suicidepreventionlifeline.org/ 

IF YOU ARE IN ABUSIVE SITUATION

Please call an abuse hotline and they WILL help you!

Sexual Abuse: 1-800-656-4673 website: 

Domestic Violence: 1-800-799-7233 website: http://www.thehotline.org/

IF YOU NEED EMERGENCY MENTAL HEALTH or SUBSTANCE ABUSE HELP

1‑877‑726‑4727 website: https://www.samhsa.gov/

Call 911 or 411 and do NOT hesitate!

IF YOU NEED MEDICAL ATTENTION

Call 911 and do NOT hesitate!

Who cares if you are "wrong" and everything is okay. Better safe to check then waiting and having something get worse and possibly irreversible. I've called 911 a million times on myself. Yes it's embarrassing & I feel stupid EVERY TIME, but hey I'm alive aren't!? ;P It's worth it! xox

*I personally have called most of these numbers and they are very helpful and resourceful!!

AFRAID OF WHAT PEOPLE WILL THINK ABOUT YOU OR BEING EMBARRASSED?

Who cares what people think about you. You will never see these people again, but  you WILL save your own life and do the right thing by reaching out for help!!

HERE'S THE STUFF THAT NOBODY READS BUT NEEDS TO TAKE SERIOUSLY. THESE ARE THE LEGAL TERMS. PLEASE ALSO SEE MY OWN TERMS & CONDITIONS ABOVE.

1. Introduction.

These Website Standard Terms And Conditions (these “Terms” or these “Website Standard Terms And Conditions”) contained herein on this webpage, shall govern your use of this website, including all pages within this website (collectively referred to herein below as this “Website”). These Terms apply in full force and effect to your use of this Website and by using this Website, you expressly accept all terms and conditions contained herein in full. You must not use this Website, if you have any objection to any of these Website Standard Terms And Conditions.

 

2. Intellectual Property Rights.

Other than content you own, which you may have opted to include on this Website, under these Terms,CHD LEGACY and/or its licensors own all rights to the intellectual property and material contained in this Website, and all such rights are reserved.

You are granted a limited license only, subject to the restrictions provided in these Terms, for purposes of viewing the material contained on this Website.

3. Restrictions.

You are expressly and emphatically restricted from all of the following:

  1. publishing any Website material in any media;

  2. selling, sublicensing and/or otherwise commercializing any Website material;

  3. publicly performing and/or showing any Website material;

  4. using this Website in any way that is, or may be, damaging to this Website;

  5. using this Website in any way that impacts user access to this Website;

  6. using this Website contrary to applicable laws and regulations, or in a way that causes, or may cause, harm to the Website, or to any person or business entity;

  7. engaging in any data mining, data harvesting, data extracting or any other similar activity in relation to this Website, or while using this Website;

  8. using this Website to engage in any advertising or marketing; Certain areas of this Website are restricted from access by you and CHD LEGACY may further restrict access by you to any areas of this Website, at any time, in its sole and absolute discretion. Any user ID and password you may have for this Website are confidential and you must maintain confidentiality of such information.

 

4. Content.

In these Website Standard Terms And Conditions, “Your Content” shall mean any audio, video, text, images or other material you choose to display on this Website. With respect to Your Content, by displaying it, you grant CHD LEGACY a non-exclusive, worldwide, irrevocable, royalty-free, sublicensable license to use, reproduce, adapt, publish, translate and distribute it in any and all media.

Your Content must be your own and must not be infringing on any third party’s rights.CHD LEGACY reserves the right to remove any of Your Content from this Website at any time, and for any reason, without notice.

 

5. No warranties.

This Website is provided “as is,” with all faults, and CHD LEGACY makes no express or implied representations or warranties, of any kind related to this Website or the materials contained on this Website. Additionally, nothing contained on this Website shall be construed as providing consult or advice to you.

This Website is provided “as is,” with all faults, and CHD LEGACY makes no express or implied representations or warranties, of any kind related to this Website or the materials contained on this Website. Additionally, nothing contained on this Website shall be construed as providing consult or advice to you.​

 

6. Limitation of Liability.

In no event shall CHD LEGACY, nor any of its officers, directors and employees, be liable to you for anything arising out of or in any way connected with your use of this Website, whether such liability is under contract, tort or otherwise, and CHD LEGACY, including its officers, directors and employees shall not be liable for any indirect, consequential or special liability arising out of or in any way related to your use of this Website.

 

7. Indemnification.

You hereby indemnify to the fullest extent CHD LEGACY from and against any and all liabilities, costs, demands, causes of action, damages and expenses (including reasonable attorney’s fees) arising out of or in any way related to your breach of any of the provisions of these Terms.

8. Severability.

If any provision of these Terms is found to be unenforceable or invalid under any applicable law, such unenforceability or invalidity shall not render these Terms unenforceable or invalid as a whole, and such provisions shall be deleted without affecting the remaining provisions herein.

 

9. Variation of Terms.

CHD LEGACY is permitted to revise these Terms at any time as it sees fit, and by using this Website you are expected to review such Terms on a regular basis to ensure you understand all terms and conditions governing use of this Website.

 

10. Assignment.

CHD LEGACY shall be permitted to assign, transfer, and subcontract its rights and/or obligations under these Terms without any notification or consent required. However, .you shall not be permitted to assign, transfer, or subcontract any of your rights and/or obligations under these Terms.

 

11. Entire Agreement.

These Terms, including any legal notices and disclaimers contained on this Website, constitute the entire agreement between CHD LEGACY and you in relation to your use of this Website, and supersede all prior agreements and understandings with respect to the same.

12. Governing Law & Jurisdiction.

These Terms will be governed by and construed in accordance with the laws of the State of FLORIDA and you submit to the non-exclusive jurisdiction of the state and federal courts located in FLORIDA for the resolution of any disputes.

u expressly accept all terms and conditions contained herein in full. You must not use this Website, if you have any objection to any of these Website Standard Terms And Conditions.