Who is Stephanie Romer?

I am a Congenital Heart Disease survivor who was born 34 years ago with one of the most terminal cases of CHD, called Hypoplastic Left Heart Syndrome, or HLHS.

I am a CHD Patient Advocate of 13 years, an author, motivational speaker, and life coach

who has made it my life's mission to turn all of the"I don't knows" of CHD into answers. 

I have dedicated the past 13 years of my life to researching and writing about the raw truth of CHD, survivors, families, spouses, siblings and doctors;

focusing on the cognitive development i.e. mental health, affects of CHD.

Make sure to Follow Me below to stay up to date with my Advocacy work, book release information in 2020, and my Crazy-Beautiful Life with CHD.