Updated: Oct 15, 2019
I had my first big mini stroke in July of 2017 and one small one in 2016. Since then I have had is two more.
I wanted to share this with everyone. Just in case what happened to me, may be happening to you or your child: during a seizure, migraine, or stroke, The LANGUAGE CENTER is the center that shut down for me. It could be different areas of the brain for others however this is just my experience.
Some Warning Signs of Mini-Strokes:
During my mini strokes I always begin slurring words, having a hard time forming words and sentences, and then twice lost the ability to speak almost instantly after my body, tongue and face went numb.
If you or your child ever loses their ability to speak during a migraine, seizure, or stroke, I discovered being desperate to talk in the hospital that we should try to see if I can write. I noticed I could see letters being put together in my head, but completely lost all ability to know how to sound out or speak the letters to the words I saw floating around in my head, so I motioned to write and after awhile of me, my mom, and our bfs playing charades, we all got on the same page. Pun intended. ;P We were in the ER so we didn't have much and my mom's bf handed me a drawing board on his phone and I was so surprised what my fingers did. Unbeknownst to any of us, sure enough, I was able to write! I was unable to speak for 12 hours with my first mini-stroke, then 5 hours with my last one. Then they tell me since it's not a permanent stroke they can't do anything, tell me to see a neurologist (appts take 6 months to get in), and send me home.
So if this ever happens, hand the patient a pen and paper or an open drawing app on your phone like my mom's boyfriend did for me, and bam I could write! It wasn't pretty, but I could write!
Another very helpful tip from Lisa Ba, is to take advantage of the dry eraser board and markers if the patient is able to stand as well as request or use your phone to find a feeling chart or photo words that say things we could point to such as "no, yes, pain, eat, fix, pillow, blanket" etc. Thank you Lisa!!!
I wanted to share this small story just in case that ever helps anyone. <3
*Feel free to share to raise awareness and if you have not signed my petition yet that I created after recovering from my first mini-stroke, please do so to help us get awareness to ER Staff and put signs in Emergency Rooms to be aware of the severity of Invisibly Disabled people. > Blog: To Emergency Room Staff Across the Nation
*If anyone wants to use this information for your organization via webinar, blog, youtube video, etc., please be respectful and do not steal my information as that has happened recently, with my ER Petition. Please do the professional, and honest thing which would be to contact me. I am more than happy to help in anyway I can and know hundreds of CHD Adults who are as well.
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Copyright © 2018 | By Stephanie Romer