Brain Development in CHD babies



Although I am very grateful for the endless amount of resources CHD Parents and children have now,

I would be lying if I didn't admit it hurts a little that we didn't get the same treatment.

Click Above Photo for video! (my video thing isn't working)

Credit: Thank you to Sisters By Heart for sharing this video! <3

After seeing this post, I wanted to turn my Facebook post into a quick blog.

This video is such an amazing, beautiful addition they have now to help sick children!

Although I am very grateful for the endless amount of resources CHD Parents and children have now, I would be lying if I didn't admit it hurts a little that we didn't get the same treatment.

For many reasons in the early stages of our brain development as infants and very very sick children we did not have people like this wonderful man to to hold us. As a result, we as CHD adults have a lot more mental issues because we never got held or loved like this. They didn't treat us very human like back then, their goal was strictly focused on keeping us alive. I have heard that at least 100 times from parents, doctors, and nurses.

The truth is: We need EXTRA love and EXTRA touch to attempt to make up for all of the neglect our brains are already recording, or to interfere with the neglect or abandonment we feel in an incubator or being tied down to a hospital bed with no human contact.

Instead, we just sat in an incubator hooked up to ivs, machines, tied down to hospital beds, and in what I used to call "the cage", with no human contact because they were afraid of getting us more sick. What this does to a child's brain is way too long to write here but some of it will be in my book.

Human touch and connecting to a human even if it's not our parents and ends up being random people like this amazing guy or nurses and doctors, is CRUICIAL to the development of a child's brain. But like I said before, they were still afraid of us in the 80s so they didn't touch us as much as a baby needs to be touched and held and talked to for its development.

I love everything they do for children now and it's also a weird type of sad feeling for all of us who never got all these amazing things that seem like common sense that they didn't apply in the 60s, 70s, and 80s.

But Im very thankful Im here to talk about it at least and see all the amazing developments they have for the see if she children to help their brains develop better than ours did. ❤

Some of the positives of being disconnected from human connection is it makes you ruthlessly reliant on yourself because your brain wires in a way that tells yourself you are the only one you can depend on because there's no one else there for you, and therefore a different level of independent and "I can do this by myself" way of life, more so than "normal" toddlers, children, and adults.

I've done SO much research and personal work on this issue if you are interested in writing, making a webinar, video, or podcast about this. Neurodevelopment fascinates me! I was honored to speak on the Neurodevelopment of CHD babies at a conference last year at Johns Hopkins.❤

*Always credit your sources!!*