Mental Health Awareness Month!
This is when and how existing health problems get worse or new ones develop. It all happens so slowly...
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- 2 min
The Other Side Of The Bed: A Patient Advocate
I have even pulled my own IV's out, bandaged up my wounds, unhooked all of my machines and wires, and discharged myself because I was...
- 2 min
Merry Christmas Hospital Staff
I would like to wish the hospital staff around the world a very Merry Christmas and a new year filled with happiness and motivation to...
- 4 min
Liver Cancer In Fontan Patients
After waiting for 4 months to find out if one of the small tumors on my liver was cancerous...If they catch Liver cancer...
- 2 min
Adulting with CHD: 7 Travel Tips
Move around...more than usual. Notice I didn't say "exercise" because that word has a lot of weight to it. So, get up & move around daily,
- 2 min
Dating A CHD Survivor: Top 10 Reasons
“Love is a battlefield.” Having CHD sometimes feel likes a war. Combine the two and things can get ugly. I’ve spoken to many CHDers about...
- 10 min
To Emergency Room Staff Across the Nation
Please help me raise awareness about this horrific problem across the US of people with INVISIBLE ILLNESSES getting treated like DRUG ADDICT
- 2 min
You Snooze?...You Win!
.."you snooze, you lose." Well, not when it comes to literally snoozing - you actually win - a lot of amazing mental and physical health ben
- 9 min
Thymus & Heart Surgery
*The original public post I wrote on Facebook on November 9, 2015 is below. There were a total of 121 comments from the CHD Community...
- 4 min
ADHD & CHD: Follow-up from Failing Tests in School
Do you as a CHD adult, or your child with CHD struggle with failing tests? Have you been told you have ADD/ADHD or your CHD child does? Have
- 1 min
Adulting with CHD: Staying Hydrated
Adulting with CHD: Hydration! I cannot stress how important staying hydrated with CHD is. It is the root to many issues we have and it take
- 3 min
I Am Just A Nurse
I am just a nurse. A Labor and Delivery nurse. Sounds like fun, doesn't it? Well... I am just the nurse who was there during the birth...
- 8 min
But You Look Fine: The Reality of being Young & Disabled
Photo Cred: IG @rebeccalegon @olivia.grace.o - @charles_mduke - @travisflores - @bfit_johnson - @samhainesy - @melanasmith85 -...
- 2 min
Bullying Kills
Photo cred: IG @emc_brown "The child was born with a medical defect that required him to undergo more than 26 surgeries and use a...
- 3 min
Caring for Adult Patients in the Hospital
It is scary for the patient and we are constantly going into uncharted territory, even if it 's the same building, with people who have...
- 4 min
ADHD & Executive Functioning in CHD Patients
I finally found out once in for all, that I do NOT have ADD or ADHD, but have extreme Executive Function and other Developmental struggles..
- 2 min
Meet Cedric
I was down on myself for having to sit down instead of keep walking like everyone else my age passing me by. I noticed how carefully and ...
- 14 min
Honoring First Generations of CHD Parents
In honor of my Mother’s birthday, I wanted to write a blog that is dedicated to the CHD parents of our generation. Complex CHD patients...
- 2 min
It's Time for Equality
Our system in America is the epitome of bullying the weak and using us for their gain. And the general healthy person doesn't understand...
- 3 min
Brain Development in CHD babies
Although I am very grateful for the endless amount of resources CHD Parents and children have now, I would be lying if I didn't admit it...
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