CHD Pioneers

7 min

Ryan Rusch: Truncus Arteriosus, 28

Update: It is with deep sadness I report that a close CHD Brother and friend, Ryan, passed away February 15, 2021 and will be horribly...

5 min

Johnathan: HLHS, 25

One of the areas I struggled the most with CHD was being bullied...they would call me names, hit me, push me, throw food at me...

4 min

Liver Cancer In Fontan Patients

After waiting for 4 months to find out if one of the small tumors on my liver was cancerous...If they catch Liver cancer...

7 min

RIP: Becca Atherton: TOF, PA, PH, 26

I want to take my feelings and gift for the written word and transform lives and bring awareness to these diseases. I hope to impact...

3 min

Kristin Heyza: Single Ventricle, 29

There is a sense of loss for me as I realize I am different from others and that I live with limitations. I face each day with courage...

8 min

Jason Crutchley

.. this news did make me depressed. I realized for the first time in my life how my CHD can really effects my life.. My mindset was always..

4 min

11,100 Days: Honoring Andrew

What do you do with 11,100 days? If you are Andrew Paukstitus, the short answer, is everything. But some of you need a little back story.

6 min

Stephanie Voakes: TGA, TA, 41

There are so many cliche sayings about being strong and surviving the life you were given. I get angry with those kind of sayings..

3 min

Jane Ennis: TGA, 24

Hi, this is my story My name is Jane Ennis and I was born on January 5th 1995 with my aortic and pulmonary arteries twisted, so I had a...

1 min

Heather Anderson: Single Ventricle, 1969

Meet Heather! Please take a few moments to watch Heather's video as she shares her brief, yet powerful story. This woman is a CHD Pioneer...

4 min

Joey Williamson: Pulmonary Atresia, 34

Meet "Hollywood" Joey Williamson Listen or Watch my story HERE My name is Joey Williamson. I was born with Congenital Heart Disease in...

6 min

Michella: Truncus Arteriosus, 31

Hi, I'm Michella from the Netherlands and live in a village nearby Utrecht. I’m born at May 30 in 1987 with Truncus Arteriosus 1 and ASD....

1 min

Adulting with CHD: Staying Hydrated

Adulting with CHD: Hydration! I cannot stress how important staying hydrated with CHD is. It is the root to many issues we have and it take

4 min

Katlyn: HLHS, 24

My name is Katlyn Marie Poliszczuk, I am 24 years old and I was born with Hypoplastic Left Heart Syndrome. Not knowing at first of the...

4 min

Ashley Van Horn: COA, 31

My name is Ashley Van Horn and my CHD's are coarctation of the aorta and bicuspid aortic valve. I was born January 14th 1987. All...

3 min

Elizabeth Webb: Single Ventricle, 32

I was born in 1986 and all was expected to be as normal as any baby could be. Instead, I had several complex congenital heart defects...

3 min

Hailie's Heart: HLHS, 21

Hailie's Heart: HLHS My name is Hailie Anne. I was born on April 22, 1998 at Decab medical center in Decatur, Ga. I was born with...

5 min

Matt Krajniak: HRHS, 29

My name is Matt Krajniak. I was born with I was born with Pulmonary Ventricular Atresia (form of HRHS) and dextrocardia on November 19,...

2 min

Kirsten Luttrell: HLHS, 28

Hi, my name is Kirsten Luttrell. I was born with HLHS at Swedish American Hospital on 2/13/91 in Rockford, Illinois. When I was one week...

8 min

Samantha, TGA, COA, 1987

Hello, my name is Samantha Lynn Davis, I am 31 years old from Huntington, WV. I was born with 4 CHDs, which include. VSD, Pulmonary...

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