Stehanie Romer, HLHS, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, disability housing, crisis, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan, Crisis Cicatrix, Author, Podcast, Julie Mae Morefield, Nina Kash, Andrew Paukstitus, disability, Sarah Miller, Katie Greene, Caitlyn MacKay, Samantha Davis, Becca Atherton, Amanda Harper, Kayla, Tiffany Wasiuk, Jasmine Gilgosch, Amber McMillan

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Stehanie Romer, HLHS, Crisis Cicatrix, Podcast, Author, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan

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Stehanie Romer, HLHS, Crisis Cicatrix, Podcast, Author, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan
About Us
Stephanie Romer is a 31-year-old Hypoplastic Left Heart Syndrome (HLHS) survivor. She was born in Dayton, Ohio in 1985 and had 3 heart surgeries at Cincinnati, Children's by Doctor Warren Bailey between 1986-1988.  Stephanie was one of the original Fontan patients in 1988.  She is a retired personal assistant, business manager, and nanny and caregiver of 12 years for special needs children and adults. She is currently a CHD Advocate, Researcher, Motivational Speaker and Writer who is working on her first book.  She  is also the Director of an Adult CHD Patient Group in Tampa, FL.
Crisis Cicatrix is a 24-year-old Hypoplastic Left Heart Syndrome (HLHS) survivor.  Born in 1993, he had his Norwood in ‘93, Hemi-Fontan in ‘94, and Fontan in ’97, at the Children’s Hospital of Philadelphia (CHOP).  He is currently a music and film producer based in Southeast Florida.
Stehanie Romer, HLHS, Crisis Cicatrix, Podcast, Author, Hypoplastic Left Heart Syndrome, Congenital Heart Disease, CHD, Congenitl Heart Defect, CHD Legacy, Advocate, Activist, Survivor, Warrior, Heart Warrior, Fontan