Meet First & Second Generation CHD Survivors & Pioneers who are knocking down barriers and squashing statistics,  while blindly teaching ourselves, loved ones, doctors, and the public how we have created a life with little to no resources.

Read & Share the empowering stories of Adult Pioneers Paving the Way!

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WHAT IS CHD?

Congenital Heart Disease survivors are now living into adulthood ...

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Submit Your Story

Submit your unfiltered, untold story of life as an Adult with CHD...

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FOUNDER

Stephanie Romer, is one of the oldest living HLHS Survivors in history...